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Short Stature/Late Bloomer Update

At just 5’ 2”, I’ve always considered myself short. And while for a woman being short has its disadvantages, it seems to have more of an impact on the lives of men who are short. This is why back in 2018 when my son’s pediatrician expressed concerns about his growth, my husband and I took her advice to have him examined by a pediatric endocrinologist.

The purpose of going to this specialist was to see if Jase was simply a late bloomer or if there might be a reason he wasn’t growing as expected. Typically, doctors expect kids to grow 2 inches per year. Jase wasn’t doing this. When we went to the endocrinologist, he had just turned 13 and was 4’ 8 1/2” tall which put him in the 4% for his age.

To understand growth percentiles, think of it this way. If 100 thirteen-year-old boys stood in a room. 96 of them would be taller than Jase.  In other words, he is short.

The endocrinologist ordered blood work and a bone age scan. And while the bone scan showed a 6-month delay from his actual age, it was within a “typical range.” The blood work also showed everything was in normal ranges. The doctor felt he might just be a late bloomer.

We went back 6 month later for a follow up. Growing but still no big growth spurt. She had us come back during the summer 6 months later. At that appointment, they repeated the blood work and bone age scan. There was a testosterone increase and from a physical exam she said he was definitely in puberty (as if we didn’t know with the pimples and voice changing.) His bone age scan showed him at 13 years old when he was actually 14. Still this is within the “typical range.”

The endocrinologist felt he was on the cusp of that big grown spurt – you know the one where your kids seem to out grow their clothes overnight. Based on his blood tests and scans, she still put him at about 5’8” to 5’9” as his final height. We just needed to have him grow. So we were scheduled to come back for another follow up in another 6 months which was just last week.

He has definitely been growing as he is now 5’ 1 ¾” tall – just a hair under my height. He has grown a good 1 ¾”inches in 6 months which his doctor calculated would put him at 3 ½” for the year – right in the range they expect a boy in puberty should be gaining.

We had hoped this would be our final visit, but alas she wanted another blood test to rule out celiac disease which could be affecting his growth and could explain why he is about 12 lbs underweight. Turns out he doesn’t have celiac disease and the low weight just may be his genetics. Both my husband and brother were rail thin as teens too.

Six months ago, he was up to the 7th percentile for his age. Last week, he was up to the 13th percentile. But for weight he is barely on the chart. He should be over 100 lbs but is at 88 right now.

So, our goal for the next four months is to get him to eat some more calories and hope he jumps up in height before our next appointment. The good thing is his doctor now says we can’t call him a late bloomer as he is blooming (growing) – just still not at the rate we want.

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